DEXTER, MASTER OF DRAGONS

Proudly Supporting Dexter’s Arc

Dexter was just five when he was diagnosed with parameningeal embryonal rhabdomyosarcoma, presenting in the nasopharyngeal. It grew aggressively out of his right nostril over a three-day period, after an agonising fight for him to be seen by medics. On December 5th 2019, we were told it was cancer and had to immediately start emergency chemotherapy. Dexter went on to have nine rounds of IVA, 33 days of intense proton radiation therapy, numerous biopsies’, lumber punctures and blood transfusions and finally six months of maintenance chemotherapy which gave our family 15 months of hope that the tumour had been killed off. Dexter’s tumour was deemed inoperable in frontline treatment. In March 2022 his three-monthly scans, showed aggressive growth from the original tumour and we were told he had likely a year on chemotherapy but on May 6th, 2022, scans proved that the treatment ineffective. We were given four to six weeks together, Dexter fought on and continued living until he passed away on 27th July 2022. He was seven years old.

Immortalised in Achroma,
Forever in our Hearts

Dexter turned five on August 18th 2019, and coming up to Christmas he was tired and grumpy, which we had thought was because being the youngest in year one was taking its toll. Unbeknown to us cancer was rapidly eating through the inside of our baby’s face. On Saturday the 30th of November 2019 he had what looked like a weepy eye, I went and got eye drops and as he tilted his little head back across my knee, we saw this red fleshy bulge protruding from the top of his left nostril. We googled it and thought it may be a nasal polyp? Sunday evening, we were all in our Christmas pj’s to celebrate the 1st day of the Christmas season when Dexter’s nose suddenly exploded. He’d never had a nose bleed before and suddenly he was covered in blood – the suspected polyp had grown.

You can show your own support to Dexter’s Arc by using the link below to donate. If you’d like to talk to us about Dexter’s Arc or anything else, please get in touch.